I have more than 20 different hospital appointments in the next 11 weeks - all related to being a pregnant diabetic. The hospital has a scheme with biweekly doctors appointments until week 32, then weekly appointments. On top of that, there are midwife appointments, numerous ultrasounds - from now on I'll have at least 2 per month to judge the baby's weight - eye screenings and appointments with my pump nurse. They sure pay a lot of attention to you and your baby! :-)
Today I had 4 appointments scheduled, which fortunately was cut to three because the gestation outpatient clinic's diabetes nurse could see that I already had a separate appointment with my regular pump nurse scheduled in three weeks time. Hence, today's program was an ultrasound, a combined OB and endo appointment (this is actually a really good construction to prevent information getting lost or doctors having opposing opinions about treatment goal etc.), and a midwife appointment.
The ultrasound revealed that the baby is following the standard weight curve, although lying approximately 10% below - I guess I'm not too surprised by that, because there haven't really been any consistent high BGs for it to feast upon. At the last ultrasound, checking for disabilities, a month ago, the technician couldn't get a clear sight of the baby's gender. This time, we had both a doctor and an ultrasound technician giving it a go, and although the baby challenged them greatly by lying with the umbilical cord between its legs being squeezed tightly together, the ultrasound technician finally announced that she felt relatively sure that it would be a baby girl :-) Maybe our little one is just a tomboy like her mom, who used to find playing soccer with the boys more fun than playing with Barbie dolls ;-)
The appointment with the docs was pretty quick as there were no new lab results or anything to discuss or adjust.
The midwife appointment was the one that we'd looked most forward to, to be able to ask some of the questions we had about the course of labour induction. We've previously been told that by principle, all pregnant diabetics will be induced at week 38, unless there are complications that would indicated the necessity of premature birth. I've felt a bit provoked by this (I don't know how better to describe the ambivalent feelings I have around this). Obviously I may feel completely ready to get it over with at that time, but I'm also quite sure that if I feel good and if there are absolutely no indications of issues with weight or anything else for the baby, then I'd definitively prefer to let her stay in there a bit longer for both of us to be more ready for birth. We discussed it with the midwife today, and was happy to know that even though induction at 38+0 is custom - and put out in a way that make it sound like it's not up for any debate at all - then we do have a choice to object to this and argue with the doctors. At any point, no induction date will be suggested until after the week 36 ultrasound and appointments, so there will be plenty of time to think about it and decide what we feel best about.
All in all, today's 3 hours at the hospital felt like a good trade for the information we received :-)
Thursday, May 03, 2012
Monday, April 16, 2012
5½ months.....
It started with 2 pink lines just around Christmas time.
About a month later, I spent an entire day at the hospital attending a handful of different introductory appointments. Two weeks later the first ultrasound checking for potential malformations was carried out, letting us see you alive for the second time.
This was also how you were introduced to the family weeks later. On purpose, we had chosen not to say anything about you for a long time because 1) we wanted to be sure that you were indeed there and doing well, and 2) minimize the amount of time that our parents would have to freak out in joy, worry and be ever-interested in mine and your well-being. My parent were the last to learn about you after almost 19 weeks. They have been more cool about it than I'd dared to hope and so far haven't increased the number of weekly phone calls to inquire about you and I. Jimmi's parents, on the other hand, have been overly interested - maybe because you'll be their first grandchild. Hence, their disappointment was quite noticeable, when you didn't want to reveal your gender at last week's second malformation-check ultrasound ;-)
Jimmi and I are just happy that you seem to be doing well, not bearing any signs of my diabetes.
I've now officially entered week 22 of your creation, and while everyone (doctors as well as other diabetic mothers) seem to say that insulin needs should already be going up-up-up, I haven't really experienced that yet. Sure, some of my basal rates have increased in the course of the past 21 weeks, but many of them have also been reduced, which was also the case for a number of them again at last week's appointment. My A1c - that has been very stable around 5.5 (+/-0.5) for the past 15 years - was 5.4 at the first check post-conception as well as 1 month later. In February, it had dropped to 5.3 and now it's down to 5.0. I would be very happy about this, not least regarding your health, was it not because of all the insane low bg's that I've been struggling the past few months. My basal rates are the very least possible the entire afternoon (0.05 u/h on a Medtronics pump), yet I can still drop like a stone when bike riding or walking. On typical workdays I'll have a 12 km bike ride in the morning and late afternoon, but because my employment contract just expired and I'm now "just" trying to finish a number of publications, my current schedule isn't as predictable. Yet, the hypos sneak their way into life every day. Yesterday, I spent the entire morning in front of the computer and on the phone, trying to fix certain issues, and still was 3.2 mmol/l (58 mg/dl) prior to lunch. A couple of hours later, I was at a very respectable 5.4 mmol/l (98 mg/dl) with the next-to-nothing afternoon basal rate in effect, and thought it was a good time for a walk with our dog. It didn't take more than 20 min to drop me to 3.1 mmol/l (56 mg/dl), though, and even though I consumed a total of 30 g of fast-acting carbs during the 75 min walk, I still was only at 2.7 mmol/l (49 mg/dl) afterwards. I used to assume that the low afternoon basal rates was a consequence of the late effect of my morning bike ride as well as part of the preparation for the ride back home from work, but yesterday's relative inactivity certainly doesn't support that notion.
I don't know. I'm not at all looking forward to becoming more insulin resistant, but I do wish that these unpredictable hypos will cease sooner rather than later :-)
About a month later, I spent an entire day at the hospital attending a handful of different introductory appointments. Two weeks later the first ultrasound checking for potential malformations was carried out, letting us see you alive for the second time.
This was also how you were introduced to the family weeks later. On purpose, we had chosen not to say anything about you for a long time because 1) we wanted to be sure that you were indeed there and doing well, and 2) minimize the amount of time that our parents would have to freak out in joy, worry and be ever-interested in mine and your well-being. My parent were the last to learn about you after almost 19 weeks. They have been more cool about it than I'd dared to hope and so far haven't increased the number of weekly phone calls to inquire about you and I. Jimmi's parents, on the other hand, have been overly interested - maybe because you'll be their first grandchild. Hence, their disappointment was quite noticeable, when you didn't want to reveal your gender at last week's second malformation-check ultrasound ;-)Jimmi and I are just happy that you seem to be doing well, not bearing any signs of my diabetes.
I've now officially entered week 22 of your creation, and while everyone (doctors as well as other diabetic mothers) seem to say that insulin needs should already be going up-up-up, I haven't really experienced that yet. Sure, some of my basal rates have increased in the course of the past 21 weeks, but many of them have also been reduced, which was also the case for a number of them again at last week's appointment. My A1c - that has been very stable around 5.5 (+/-0.5) for the past 15 years - was 5.4 at the first check post-conception as well as 1 month later. In February, it had dropped to 5.3 and now it's down to 5.0. I would be very happy about this, not least regarding your health, was it not because of all the insane low bg's that I've been struggling the past few months. My basal rates are the very least possible the entire afternoon (0.05 u/h on a Medtronics pump), yet I can still drop like a stone when bike riding or walking. On typical workdays I'll have a 12 km bike ride in the morning and late afternoon, but because my employment contract just expired and I'm now "just" trying to finish a number of publications, my current schedule isn't as predictable. Yet, the hypos sneak their way into life every day. Yesterday, I spent the entire morning in front of the computer and on the phone, trying to fix certain issues, and still was 3.2 mmol/l (58 mg/dl) prior to lunch. A couple of hours later, I was at a very respectable 5.4 mmol/l (98 mg/dl) with the next-to-nothing afternoon basal rate in effect, and thought it was a good time for a walk with our dog. It didn't take more than 20 min to drop me to 3.1 mmol/l (56 mg/dl), though, and even though I consumed a total of 30 g of fast-acting carbs during the 75 min walk, I still was only at 2.7 mmol/l (49 mg/dl) afterwards. I used to assume that the low afternoon basal rates was a consequence of the late effect of my morning bike ride as well as part of the preparation for the ride back home from work, but yesterday's relative inactivity certainly doesn't support that notion.I don't know. I'm not at all looking forward to becoming more insulin resistant, but I do wish that these unpredictable hypos will cease sooner rather than later :-)
Monday, January 16, 2012
22 years
Twenty two years ago today, I was admitted to hospital with a Type 1 diabetes diagnosis. I'm pleased to have survived all these years, virtually complication-free (i.e., if one doesn't count in the occasional hypo-unawareness), yet I'm also saddened by the fact that the promised cure still seem far away. The more I've learn, especially from my education in biomedicine, I've come to think that we will not see a cure until we learn to manage the immune system as well as replace the beta cells that the former mentioned immune system has killed off. This is tricky, and although I hope that it will happen some day, I'm not holding my breath. Instead, I enjoy life despite of diabetes - something which has become far more easy with the technologies of current time, such as insulin pumps, smaller and faster BG-meters, not to forget continuous glucose monitoring systems (CGMs).
Cheers to the first 22 years - I'm off to "celebrate" by working late in the MS-lab :-/
Cheers to the first 22 years - I'm off to "celebrate" by working late in the MS-lab :-/
Wednesday, October 12, 2011
I wonder.....
....if different pumps, even of identical model and brand, deliver slightly different amounts of insulin when set at the same rates?
I'm not thinking differences in the range of entire units, but maybe 0.01-0.02 unit differences in delivery when set at the same rates, due to minute differences in the mechanics.
The reason I even ask this question is that when I changed my infusion set first thing Monday morning this week, I also switched to the pump replacing my old, cracked one, and ever since I've had way more hypos than usual. Actually to the point where there are almost as many readings below 4.0 mmol/l as there are between 4.0 mmol/l (72 mg/dl) and 8.5 mmol/l (154 mg/dl) (my desired range). I've only had one high reading Tuesday morning after overtreating a pre-bed hypo in fear of more hypos after a day with no less than 10 readings of 2.1-3.3 mmol/l (38-60 mg/dl)!
I'd entered all my settings with my old pump in one hand and the new one in the other, reviewing them all multiple times to be sure that there were no discrepancies. The significant number of lows could of course be caused by something else and in this sense be totally coincidental, but I do find it strange that it's been like this since Monday. I'll await how the numbers behave after my next site change before I start tweaking basal rates and ins:carb-ratios. Until then I'm wondering about pumps, precision and performance - as well as how I avoid the next hypo :-)
I'm not thinking differences in the range of entire units, but maybe 0.01-0.02 unit differences in delivery when set at the same rates, due to minute differences in the mechanics.
The reason I even ask this question is that when I changed my infusion set first thing Monday morning this week, I also switched to the pump replacing my old, cracked one, and ever since I've had way more hypos than usual. Actually to the point where there are almost as many readings below 4.0 mmol/l as there are between 4.0 mmol/l (72 mg/dl) and 8.5 mmol/l (154 mg/dl) (my desired range). I've only had one high reading Tuesday morning after overtreating a pre-bed hypo in fear of more hypos after a day with no less than 10 readings of 2.1-3.3 mmol/l (38-60 mg/dl)!
I'd entered all my settings with my old pump in one hand and the new one in the other, reviewing them all multiple times to be sure that there were no discrepancies. The significant number of lows could of course be caused by something else and in this sense be totally coincidental, but I do find it strange that it's been like this since Monday. I'll await how the numbers behave after my next site change before I start tweaking basal rates and ins:carb-ratios. Until then I'm wondering about pumps, precision and performance - as well as how I avoid the next hypo :-)
Saturday, October 08, 2011
Replacement of an injured pump
A couple of months ago or so, I noticed that my pump had some cracks on each side of the reservoir window. I made a mental note to inquire about this the next time I saw my D-nurse, and then forgot about it again - well at least until the next time I saw a crazy number that called for inspection of tubing and reservoir for air bubbles :-)
The cracks are visible as thin white lines on the above pictures, my apologies for the poor quality of these, but close-up detail coverage isn't a force of our camera ;-) The cracks actually go all the way into the reservoir window, which on more than one occasion has made me question whether the reservoir was damaged, even if it was bright new and I hadn't noticed anything when filling it up.
Last week, I had an appointment with my D-nurse and showed her the cracks (in Denmark, insulin pumps as well as the supplies are paid for by the hospital treating you, hence I had to ask whether they would want to just replace it or if I should contact the pump company rep about it). Turned out, the decision and way of replacement would depend on whether the warranty period had expired or not - neither of us could recall exactly when I had gotten the now cracked pump.
A call to the company rep revealed that my current pump was still under warranty and so the company would send an identical replacement model (if the warranty period had expired, the hospital would have provided me with the newer Paradigm Veo). So now I have a replacement pump to set up before I retire the old one by direct mail to the company :-)
Last week, I had an appointment with my D-nurse and showed her the cracks (in Denmark, insulin pumps as well as the supplies are paid for by the hospital treating you, hence I had to ask whether they would want to just replace it or if I should contact the pump company rep about it). Turned out, the decision and way of replacement would depend on whether the warranty period had expired or not - neither of us could recall exactly when I had gotten the now cracked pump.
A call to the company rep revealed that my current pump was still under warranty and so the company would send an identical replacement model (if the warranty period had expired, the hospital would have provided me with the newer Paradigm Veo). So now I have a replacement pump to set up before I retire the old one by direct mail to the company :-)
Tuesday, September 06, 2011
Tough diabetes gear
Last night I'd made the second site change of the day, this time nesting the set on my left thigh. In this process, I'd just binned the new tubing as I already had a new and insulin-filled tubing from the site change I did in the morning. Getting ready for bed, I heard a cracking sound when I pulled up my Pj bottoms. The source of said cracking sound is visible in the picture: One site of the tubing connection had snapped off.
I was suprised though, to find that the set still works - the tubing still sticks properly to the set and it's still possible to disconnect with no issues. I guess our diabetes gear is just as tough as we're stubborn in exchanging them :-)
I was suprised though, to find that the set still works - the tubing still sticks properly to the set and it's still possible to disconnect with no issues. I guess our diabetes gear is just as tough as we're stubborn in exchanging them :-)
Tuesday, August 02, 2011
It requires a lot of time and effort....
Denmark has very high tax rates - don't know if they're still the highest in the world or if the current government's tax stop has changed that. Our high taxes pay for free education, unless you choose private schools, free medical care (there are some exemptions here as well) and many other services for the benefit of the population.
Diabetes is no cheep acquaintance. Living in Denmark, and for the past few years also in Scotland, however has kept the costs of insulin, pump supplies and test materials low for me. In Scotland, NHS made sure that I got all my insulin and test supplies for free. In Denmark, the hospital I attend pays for my pump, its supplies (except personal pump accessories of course) and the CGM sensors that I may need to use. Insulin is not free of cost. It used to be, but years ago the rules were changed so that we've now got a central subsidy scheme where prescription only medication is subsidised by different rates. If your medicine costs less than 865 kr (approximately $160), you pay the full price, but above that you get 50% subsidised up to 1,410 kr (approximately $265), then 75% for costs between 1,410 kr and 3,045 kr (approximately $265-570), and for everything above the 3,045 kr mark you get 85% of the costs covered. There are different rates for children, but there is still something to pay. For every person, the subsidy scheme is reset 1 year after the first transaction. With the different meds I use, I generally spent most of each "subsidy year" at the higher subsidy rates, but I still find this system sub-optimal. Especially when I was a student, it meant a lot whether I had to pay 1,500 kr (approximately $282) or 15 kr (less than $3) for my medication. Now that I'm employed, I'm better able to cope with these greatly varying medical expenses. I know that this type of system is probably far easier to administrate so that most people can benefit from it, regardless how dependent they are of prescription only meds, but while the average monthly cost for me and other chronically ill people in general is affordable, it is a killer that in reality the costs are so unevenly distributed.
Coverage of test strips, lancets, meters, pen needles and syringes etc. have long been regulated, though mainly for type 2 PWDs, and the regulations have varied from council to council around the country. Most places, type 1 PWDs have access to unlimited amounts of test materials free of charge, while type 2 PWDs can only get a certain number (I believe it's some 150 test strips/month, but am not sure). Some councils have had restrictions on where you could get the supplies (i.e. pharmacy or private vendors), but for most parts you'd still have unlimited choice of products. This is now changing - at least where I happen to live. A couple of months ago I received a call from a representative of Danish diabetics asking me if I had any issues getting the test supplies and needles that I wanted now that my council had made a deal with a private vendor about the delivery of these products. I was rather uncomprehending as the council had used this vendor for years already, and I had never had any issues in the past. Mid-June, however, I received a message from the council that they had indeed made a new deal with said vendor, valid from March of this year and 3 years ahead, and that from now on only certain items would be covered. When I looked through the list of items now covered, I was surprised to see that most of the test strips that I use were no longer covered, especially as I had received my latest order in April and had not had to pay anything.
Annoyed and a bit confused I phoned the municipality services to inquire about this. I was told that the council had decided upon the selection of meters, test strips and lancets based on what was most often ordered. I was still puzzled by this answer, as I know that I order about 1,200 test strips every year for my main meter. These strips are included in the current deal, however only in 50 strips packages and not the 100 strips packages that I normally order. The response was that the pack size had been chosen to accomodate the restrictions on number of test strips covered for type 2 PWDs. Hmm, I guess I can live with this - twice the number of test strip cassettes will obviously take up more space in my closet, but it's the council who'll have to pay more for the higher number of 50 strips packs than for less 100 strips packs. What bothers me more is the fact that the selection of meters included in the deal is so narrow, and doesn't contain a single of the small, handy meeters. Most of the meters on the list are rather big/heavy, their main feature being big displays. Two of the meters that I use are on the list - my primary meter and a newer all-in-one solution that I find some use of when on the move where a single-hand operated device generating no waste is nice. The latter meter, however will probably never be my favourite due to its size and weight (it almost resembles a late 1980'es cell phone by size and weight). I'm of course pleased to find my primary meter on the list, but also greatly saddened to see that the FreeStyle Lite meter that I keep on my night stand for middle of the night/first thing in the morning tests is not. To my knowledge, the FreeStyle meters are the only ones (available to Danish PWDs) with a test strip light, which is why I heart this meter by my bed. I don't have to get up to turn on the light when I feel queasy from a middle of the night low, and most important, I can perform the test immediately instead of having to wait until my eyes have grown accustomed to the light, thus also making it much easier for me to go back to sleep afterwards. I don't even want to think about how little sleep I might get when having to deal with basal rate tests without a meter that I can use in the dark!
Poking my fingers up to 15 times a day (when I'm not wearing a sensor), I have carefully chosen the lancets that I prefer, not to mention the lancing device. None of them are on the current list. It's not that I need to renew my lancing device that often, and it isn't even that expensive, but it bothers me that I can now only choose from thicker lancets than the ones I currently use, unless I pay for them myself. My fingertips definitely tells me that there's a huge difference between using lancets of 30G (a selection of which, as well as some 28G, are available from the current list) and the 33G ones that I've used ever since they came out. In Scotland I had the "pleasure" of getting the same brand of lancets in 30G instead of 33G once, and it was a painful month to get through, leaving numerous black dots on my otherwise dot-free fingertips!
My phone call to the council assured me that of course I could continue to order the supplies I wanted, but that I would be billed for those not included in the current deal. While promising myself that I wouldn't leave this without a fight, I accepted this message. Today I had to order new supplies and as usual I logged in to the vendor's web shop for this. My order contained both supplies included in the deal, a lot that are not, and some glucose gel. The glucose gel and other non-medical consumables (food, books, batteries, etc.) are usually paid for during the check-out process, and I had been told that billing for the supplies not included in the deal would be handled separately, so I just proceeded to check-out to pay for my gel. However, I wasn't able to proceed, just got an error message that I couldn't continue while running "Navision Application Server". I didn't really know what to make of that so I had to call their customer service, and was then told that this was because my order contained items not covered by my council's deal with the vendor, and that the vendor just had not yet managed to set up the online ordering system to deal with such orders! Sheesh!!!! I then had to give my order by phone, and time and time again assure the customer service assistant that, yes, I knew that I'd have to pay for part of my order, and indeed I would do so as well as fight the council separately.
Now I need to gather information about the legislation on this area to see what my options for arguing the council's decision are. My current order will cost me 1,700 kr ($320), and will probably last me for a couple of months, so if I have to pay for everything in the future, I need to revise my budget to include these significant additional expenses. Don't get me wrong, I don't see it as an obligation for everybody else to pay for my medical expenses, but I do find it wrong that I'm charged such high taxes without then being able to choose what I want these tax money spend on. If I and other PWDs pose too high costs for the council then I'd rather the council limit the total amount they'd be willing to pay for my D supplies than having them try to force me to use "medieval" remedies. I know it's all about budget cuts, and that some will probably see me and other Danes as spoiled kids when we complain about these types of restrictions, but it's probably because they have never been used to a tax-financed health care system, or if they have, then have never had to make as much use of it as chronically ill people have. In a country with high tax rates nobody will make equal use of all the services paid for over the taxes, it's a joint club and those who have no need for medical aids may have a host of school-aged kids who get free education, or spend hours every day on the roads and bridges that are also partly or fully financed by taxes.
It does indeed require a significant amount of time and effort to cope with the challenges presented to us in consequence of diabetes - especially when we don't only have to fight our own body but also municipal decisions affecting our health.
Diabetes is no cheep acquaintance. Living in Denmark, and for the past few years also in Scotland, however has kept the costs of insulin, pump supplies and test materials low for me. In Scotland, NHS made sure that I got all my insulin and test supplies for free. In Denmark, the hospital I attend pays for my pump, its supplies (except personal pump accessories of course) and the CGM sensors that I may need to use. Insulin is not free of cost. It used to be, but years ago the rules were changed so that we've now got a central subsidy scheme where prescription only medication is subsidised by different rates. If your medicine costs less than 865 kr (approximately $160), you pay the full price, but above that you get 50% subsidised up to 1,410 kr (approximately $265), then 75% for costs between 1,410 kr and 3,045 kr (approximately $265-570), and for everything above the 3,045 kr mark you get 85% of the costs covered. There are different rates for children, but there is still something to pay. For every person, the subsidy scheme is reset 1 year after the first transaction. With the different meds I use, I generally spent most of each "subsidy year" at the higher subsidy rates, but I still find this system sub-optimal. Especially when I was a student, it meant a lot whether I had to pay 1,500 kr (approximately $282) or 15 kr (less than $3) for my medication. Now that I'm employed, I'm better able to cope with these greatly varying medical expenses. I know that this type of system is probably far easier to administrate so that most people can benefit from it, regardless how dependent they are of prescription only meds, but while the average monthly cost for me and other chronically ill people in general is affordable, it is a killer that in reality the costs are so unevenly distributed.
Coverage of test strips, lancets, meters, pen needles and syringes etc. have long been regulated, though mainly for type 2 PWDs, and the regulations have varied from council to council around the country. Most places, type 1 PWDs have access to unlimited amounts of test materials free of charge, while type 2 PWDs can only get a certain number (I believe it's some 150 test strips/month, but am not sure). Some councils have had restrictions on where you could get the supplies (i.e. pharmacy or private vendors), but for most parts you'd still have unlimited choice of products. This is now changing - at least where I happen to live. A couple of months ago I received a call from a representative of Danish diabetics asking me if I had any issues getting the test supplies and needles that I wanted now that my council had made a deal with a private vendor about the delivery of these products. I was rather uncomprehending as the council had used this vendor for years already, and I had never had any issues in the past. Mid-June, however, I received a message from the council that they had indeed made a new deal with said vendor, valid from March of this year and 3 years ahead, and that from now on only certain items would be covered. When I looked through the list of items now covered, I was surprised to see that most of the test strips that I use were no longer covered, especially as I had received my latest order in April and had not had to pay anything.
Annoyed and a bit confused I phoned the municipality services to inquire about this. I was told that the council had decided upon the selection of meters, test strips and lancets based on what was most often ordered. I was still puzzled by this answer, as I know that I order about 1,200 test strips every year for my main meter. These strips are included in the current deal, however only in 50 strips packages and not the 100 strips packages that I normally order. The response was that the pack size had been chosen to accomodate the restrictions on number of test strips covered for type 2 PWDs. Hmm, I guess I can live with this - twice the number of test strip cassettes will obviously take up more space in my closet, but it's the council who'll have to pay more for the higher number of 50 strips packs than for less 100 strips packs. What bothers me more is the fact that the selection of meters included in the deal is so narrow, and doesn't contain a single of the small, handy meeters. Most of the meters on the list are rather big/heavy, their main feature being big displays. Two of the meters that I use are on the list - my primary meter and a newer all-in-one solution that I find some use of when on the move where a single-hand operated device generating no waste is nice. The latter meter, however will probably never be my favourite due to its size and weight (it almost resembles a late 1980'es cell phone by size and weight). I'm of course pleased to find my primary meter on the list, but also greatly saddened to see that the FreeStyle Lite meter that I keep on my night stand for middle of the night/first thing in the morning tests is not. To my knowledge, the FreeStyle meters are the only ones (available to Danish PWDs) with a test strip light, which is why I heart this meter by my bed. I don't have to get up to turn on the light when I feel queasy from a middle of the night low, and most important, I can perform the test immediately instead of having to wait until my eyes have grown accustomed to the light, thus also making it much easier for me to go back to sleep afterwards. I don't even want to think about how little sleep I might get when having to deal with basal rate tests without a meter that I can use in the dark!
Poking my fingers up to 15 times a day (when I'm not wearing a sensor), I have carefully chosen the lancets that I prefer, not to mention the lancing device. None of them are on the current list. It's not that I need to renew my lancing device that often, and it isn't even that expensive, but it bothers me that I can now only choose from thicker lancets than the ones I currently use, unless I pay for them myself. My fingertips definitely tells me that there's a huge difference between using lancets of 30G (a selection of which, as well as some 28G, are available from the current list) and the 33G ones that I've used ever since they came out. In Scotland I had the "pleasure" of getting the same brand of lancets in 30G instead of 33G once, and it was a painful month to get through, leaving numerous black dots on my otherwise dot-free fingertips!
My phone call to the council assured me that of course I could continue to order the supplies I wanted, but that I would be billed for those not included in the current deal. While promising myself that I wouldn't leave this without a fight, I accepted this message. Today I had to order new supplies and as usual I logged in to the vendor's web shop for this. My order contained both supplies included in the deal, a lot that are not, and some glucose gel. The glucose gel and other non-medical consumables (food, books, batteries, etc.) are usually paid for during the check-out process, and I had been told that billing for the supplies not included in the deal would be handled separately, so I just proceeded to check-out to pay for my gel. However, I wasn't able to proceed, just got an error message that I couldn't continue while running "Navision Application Server". I didn't really know what to make of that so I had to call their customer service, and was then told that this was because my order contained items not covered by my council's deal with the vendor, and that the vendor just had not yet managed to set up the online ordering system to deal with such orders! Sheesh!!!! I then had to give my order by phone, and time and time again assure the customer service assistant that, yes, I knew that I'd have to pay for part of my order, and indeed I would do so as well as fight the council separately.
Now I need to gather information about the legislation on this area to see what my options for arguing the council's decision are. My current order will cost me 1,700 kr ($320), and will probably last me for a couple of months, so if I have to pay for everything in the future, I need to revise my budget to include these significant additional expenses. Don't get me wrong, I don't see it as an obligation for everybody else to pay for my medical expenses, but I do find it wrong that I'm charged such high taxes without then being able to choose what I want these tax money spend on. If I and other PWDs pose too high costs for the council then I'd rather the council limit the total amount they'd be willing to pay for my D supplies than having them try to force me to use "medieval" remedies. I know it's all about budget cuts, and that some will probably see me and other Danes as spoiled kids when we complain about these types of restrictions, but it's probably because they have never been used to a tax-financed health care system, or if they have, then have never had to make as much use of it as chronically ill people have. In a country with high tax rates nobody will make equal use of all the services paid for over the taxes, it's a joint club and those who have no need for medical aids may have a host of school-aged kids who get free education, or spend hours every day on the roads and bridges that are also partly or fully financed by taxes.
It does indeed require a significant amount of time and effort to cope with the challenges presented to us in consequence of diabetes - especially when we don't only have to fight our own body but also municipal decisions affecting our health.
Tuesday, July 26, 2011
What kept me too busy to blog......
As I mentioned in my post last week, I'd give you a review of what has kept me from blogging these past 3½ years, diabetes included. In short, I'd say that it has been a mixture of intensive work and everything around deciding to build the new house that we moved into in December last year. This has obviously all been seasoned with diabetes high and lows, but also with a final exam and subsequent unemployment on different levels, while trying to land either a job or funding for a research project that I want to carry out.
My leather-bound thesis - its contents kept me busy for the past 3½ years :-)
In my last post before my un-noticed hiatus, I was about to leave for Glasgow as part of my postgraduate studies, and part of the preparation for that trip involved getting my hands on a CGM. I had hoped to update you on my experience with the Minimed Paradigm CGM, but that didn't happen in a timely manner, and while every experience is individual, I'll definitely spare you a lengthy review on the pros and cons of this system :-) In short though, I can say that I have used Minimed's system on and off ever since. I say on and off because while I'd were it continuously whenever in Glasgow for extended periods of time, I'd typically take a break from it when back in DK, only using it for special occations (e.g. stressful weeks around deadlines, conferences, moving, etc.). While it definitely does have its flaws, I wouldn't have wanted to be without it over these years and I'll likely continue to use it in the future when need be. Even though my current system cannot provide predictive alarms, it saved me numerous times in Glasgow. However, I've never found it to be good with sudden, drastic changes, and as these do occur - sometimes not even giving me enough time to actually feel them - I have experienced the impressive helpfulness of the Scots and their emergency services. These episodes were fortunately far in between, and only one had other consequences than my pride and D-self confidence getting knocked down:
My laptop screen didn't survive a "dance" with a lamppost during a severe and sudden-onset hypo. My laptop was in my backpack and as I tried to stay on my feet with a BG well below 2 - the EMT arriving a few minutes later tested me at 1.2 (approximately 22 in American measures) - I stepped/fell backwards against a lamppost one or more times before settling on the sidewalk. It's never fun when lows affect anything but yourself, yet fortunately I came back up without being too hurt and the laptop screen could easily be replaced.
My postgraduate study obviously took a lot of my time over the past years. It's been super-exciting and super-tough at the same time. While I was a registered PhD-student with a Glasgow-based university, my project had me spent just as much time at a Danish university, carrying out specialised analyses in the research group where I did my graduate work years before. A combination of lab-work, data analysis and extensive progress reports made for the typical work weeks to hover around 50-70 hours - certainly not healthy to anyone, let alone PWDs. I'm fairly convinced that all this work on top of all the "life" things that I had to fit into my schedule played a big role in the difficulties of managing D that would sometimes be manifested by hard crashes - of course almost always while asleep when I'm least likely to cooperate with Jimmi's suggestions or demands. Especially the last part of the project work was tough as I not only had to finish a lot of experiments and write up a monster thesis of 200-250 pages (I'd have preferred the Danish version of just 50-60 pages along with publications ;-)), but at the same time also had to take part in all the preparations for becoming house owners. There were a lot of issues around the handing over of our house, so we ended up getting it just a few days before I had to leave for Glasgow to hand in my thesis. I was beyond stressed at that time, but somehow managed to hand in my work, register as unemployed, pack down our old home and move into our new house in just about a week's time! This was, however, after several bad nighttime hypos on those nights where I actually made it to bed in stead of working on my thesis.
The beginning of 2011 was a combination of getting used to our new house, and the fact that its location generally meant longer bike rides for me (insulin adjustments required), as well as trying to sort out future work plans and possibilities. I had hoped to have at least the work part sorted rater soon as I was given the impression that we might find a bit of money to continue the collaboration from my postgraduate study, at least on a temporary basis. My supervisor in Glasgow and I had prepared project plans to further explore my work and findings. Both of us applied for money to support different versions of this work, but neither of us had any luck with our applications. When I was back in Glasgow for my viva in February, we managed to get things sorted for a temporary research position, though only part-time. My contract would have me mainly working in Denmark, and when it ended in June it was perfectly matched for yet another trip to Glasgow for graduation. When I returned from Glasgow, I started a new position in my old DK-lab. This is also a temporary position, but it's full time and hopefully it will provide me enough time to have at least one of my research manuscripts submitted for publication in order to increase my chances of attracting funding in the future :-)
My parents, me and my supervisor at the graduation reception
Graduates and their families filling the graduation garden
My leather-bound thesis - its contents kept me busy for the past 3½ years :-)In my last post before my un-noticed hiatus, I was about to leave for Glasgow as part of my postgraduate studies, and part of the preparation for that trip involved getting my hands on a CGM. I had hoped to update you on my experience with the Minimed Paradigm CGM, but that didn't happen in a timely manner, and while every experience is individual, I'll definitely spare you a lengthy review on the pros and cons of this system :-) In short though, I can say that I have used Minimed's system on and off ever since. I say on and off because while I'd were it continuously whenever in Glasgow for extended periods of time, I'd typically take a break from it when back in DK, only using it for special occations (e.g. stressful weeks around deadlines, conferences, moving, etc.). While it definitely does have its flaws, I wouldn't have wanted to be without it over these years and I'll likely continue to use it in the future when need be. Even though my current system cannot provide predictive alarms, it saved me numerous times in Glasgow. However, I've never found it to be good with sudden, drastic changes, and as these do occur - sometimes not even giving me enough time to actually feel them - I have experienced the impressive helpfulness of the Scots and their emergency services. These episodes were fortunately far in between, and only one had other consequences than my pride and D-self confidence getting knocked down:
My laptop screen didn't survive a "dance" with a lamppost during a severe and sudden-onset hypo. My laptop was in my backpack and as I tried to stay on my feet with a BG well below 2 - the EMT arriving a few minutes later tested me at 1.2 (approximately 22 in American measures) - I stepped/fell backwards against a lamppost one or more times before settling on the sidewalk. It's never fun when lows affect anything but yourself, yet fortunately I came back up without being too hurt and the laptop screen could easily be replaced.
My postgraduate study obviously took a lot of my time over the past years. It's been super-exciting and super-tough at the same time. While I was a registered PhD-student with a Glasgow-based university, my project had me spent just as much time at a Danish university, carrying out specialised analyses in the research group where I did my graduate work years before. A combination of lab-work, data analysis and extensive progress reports made for the typical work weeks to hover around 50-70 hours - certainly not healthy to anyone, let alone PWDs. I'm fairly convinced that all this work on top of all the "life" things that I had to fit into my schedule played a big role in the difficulties of managing D that would sometimes be manifested by hard crashes - of course almost always while asleep when I'm least likely to cooperate with Jimmi's suggestions or demands. Especially the last part of the project work was tough as I not only had to finish a lot of experiments and write up a monster thesis of 200-250 pages (I'd have preferred the Danish version of just 50-60 pages along with publications ;-)), but at the same time also had to take part in all the preparations for becoming house owners. There were a lot of issues around the handing over of our house, so we ended up getting it just a few days before I had to leave for Glasgow to hand in my thesis. I was beyond stressed at that time, but somehow managed to hand in my work, register as unemployed, pack down our old home and move into our new house in just about a week's time! This was, however, after several bad nighttime hypos on those nights where I actually made it to bed in stead of working on my thesis.
The beginning of 2011 was a combination of getting used to our new house, and the fact that its location generally meant longer bike rides for me (insulin adjustments required), as well as trying to sort out future work plans and possibilities. I had hoped to have at least the work part sorted rater soon as I was given the impression that we might find a bit of money to continue the collaboration from my postgraduate study, at least on a temporary basis. My supervisor in Glasgow and I had prepared project plans to further explore my work and findings. Both of us applied for money to support different versions of this work, but neither of us had any luck with our applications. When I was back in Glasgow for my viva in February, we managed to get things sorted for a temporary research position, though only part-time. My contract would have me mainly working in Denmark, and when it ended in June it was perfectly matched for yet another trip to Glasgow for graduation. When I returned from Glasgow, I started a new position in my old DK-lab. This is also a temporary position, but it's full time and hopefully it will provide me enough time to have at least one of my research manuscripts submitted for publication in order to increase my chances of attracting funding in the future :-)
My parents, me and my supervisor at the graduation reception
Graduates and their families filling the graduation gardenWednesday, July 20, 2011
"Life"......
Those of you who used to read my blog will know that it has been very long since the last update here. It’s not that I’ve been cured from diabetes and therefore have had nothing D-related to write about. There have been plenty of blogable events involving diabetes in the past 3½ years, but there just hasn’t been time – or energy – from my side to consistently blog while working 40-70 hours a week on my postgraduate studies.
Jimmi and I in front of the Famous Grouse at Glenturret Distillery in Scotland this summer
Last week, I read a blog post by Alexis over at I Run on Insulin. In essence, her entry was about how that little thing called “life” sometimes makes it difficult to do all you the things you want/need/have to do, online as well as in person, when there’s just 24 hours in a day. I had to comment on this, and that lead to a comment for me from another blogger that my updating my blog was missed. Even if just one or very few people think this, I’m very honoured by it :-)
So here I am with the first update since January 2008, but whether this entails a full revival of this blog, I dare not promise. If “life” allows, I’ll continue to try to check in here once in a while, maybe even try to do the required amount of dusting on my blog settings (layout, about me info, blog role etc.). I’ll also try to post again in the very near future to answer a couple of questions related to what I’ve been doing since 2008.
To end this, I’d like to repeat my statement in my comment for Alexis’ post last week: I know that the DOC is a very tolerant creature that will just appreciate those few times when I actually manage to contribute – and thank you all for that, and for being such an incredible source of advice and support when we need it!
Jimmi and I in front of the Famous Grouse at Glenturret Distillery in Scotland this summerSunday, January 27, 2008
Getting everything settled
Friday next week I will leave for
Before Christmas my supervisor and I agreed that it would be good if I could come to Glasgow in the beginning of this year, but even so I don’t feel like I have had enough time to actually plan my trip. The reasons for this are that work has been crazy during January. My Danish supervisor expected me to assist and train a foreign post-doc coming here for a short visit end of January in order to learn how to analyse some samples that our lab had run for her. This was planned even before Christmas, and as I knew she would be here the last 2 weeks of January, I figured that I probably wouldn’t be able to leave for
I managed to have a very decent draft of my review done last Sunday, and have used whatever few minutes I would have during the week to proof-read and refine it, while having to use the majority of my time to trouble-shoot data processing and software installation issues. At the same time I also had to get my trip to
Being busy for me usually means an increased frequency of hypos and as my regulation haven’t been the best the past couple of months I have had even more issues with this. Just before this crazy schedule started I had an appointment with my D-nurse and we agreed that some basal testing was needed. Thus, on top of all the work/study related stuff, I have also tried to fit in some attention to basal testing. It has been very difficult, and it is probably not the most optimal to combine busy schedules with basal testing, but I felt I had no choice as I have had far to many hypos in general lately. I have been making some changes to my basals during this period of basal testing, but the changes don’t seem consistent – as in one day they appear to work, the next they don’t – and I still have too many hypos to actually not worry about my coming trip to
I went for a blood draw Friday morning to get some thyroid results, and at the same time I had an A1c done. The result was in my file on the Funen Diabetes Database later that day: 4.9%! That is a 0.4 drop from beginning of November, and the lowest A1c result I have ever had. Aside from the fact that
I have been thinking a lot about what to do about my stay in
Wish me luck, and I will try to post about my adventures in Glasgow, if not during my stay then at least afterwards :-)
Wednesday, January 16, 2008
18 years, hypos, and busy schedules
In Denmark 18 is the legal age, allowing you to get a drivers license, vote, and officially take care of your self etc. Today, D and me turn 18 together, but somehow it doesn’t seem quite as big and important as when I turned 18 twelve years ago :-) Still, I cannot help to think about the progress within D research and treatment the past 18 years have shown. Although the cure that was also promised me within a few years when I was diagnosed still remains to be found, a lot of other important milestones have been reached. I remember a nurse on the hospital where I was admitted as newly diagnosed showing and telling me and my parents about how she could now eat and enjoy sweets again (as in not eating them to correct hypoglycemia) because she had gotten an insulin pump. Obtaining more information on the insulin pumps of the time blurred that picture quite a bit, and for several years I thought that I would never want to be treated that way because of the risk of DKA. 16 years and 3 months – and, indeed, a lot of progress – later I was hooked up to one for the first time, and while being somewhat reluctant about it, I have come to appreciate what this treatment strategy offers me in terms of freedom. It does of course have its issues and drawbacks, but I guess most treatments and/or equipment have that ;-)
Hypoglycemia and a busy schedule do not work well together. Today, once again my afternoon has been disturbed by a low BG, causing me to have to take a break from what I was doing. I couldn’t concentrate on what I was reading, and thought that I might as well take advantage of the time I needed to spend away from it, repairing the low BG, and write on my blog :-)
I am in the process of working this out, but it a process that is significantly slowed down by an immense amount of work-/study stress. Just after New Year I actually started the process of thoroughly testing my basal rates, as my numbers the last couple of months – and in general if you ask my loving pump- and D-nurse ;-) – clearly indicate that insulin levels need to be reduced. Even though I had a lot of plans to effectuate at work along with planning my trip to Glasgow at late January or beginning of February, I felt that I could work some basal test into the scheme. In the first week of 2008 I felt I was moving at a very decent pace, working out plans for experiments to carry out during week 2, researching the areas that I should check out when coming to Glasgow, as well as putting down the experiments and other practical issues that I should take care of over there. I knew that I was expected to stay in Odense until end of January to help an Italian post-doc with some data analysis, and I wanted to test the data and the software necessary for its analysis prior to her arrival mid month. This was a clever thought as I have, of course, run into trouble with this – bioinformatics is always a challenge :-)
My feeling of energy for the different tasks and assignments suffered an abrupt disappearance when I opened my University of Strathclyde mailbox in the beginning of week 2. I had received an e-mail telling me that my 3 month literature review was due now, and should be uploaded electronically as soon as possible. Reading the mail my jaw dropped down, and my mind started racing: What 3 month literature review? What should it contain? When is the exact deadline? Have I heard about this before?........ I search the university web-site to find information as I cursed the inability to obtain sufficient information about the obligations as a Scottish PhD-student. I couldn’t find the information I needed so I replied to the e-mail to inquire about it. That gave me an attachment of the institute’s post graduate study handbook with a note that I could find the information in that. Reading the 52-page Word-document sure provided me with some needed answers, both regarding assignments that should be handed in during the study (the intended contents of some of these reports were very well described) and the courses that I should attend. Unfortunately, the 3 month literature review that I was most keen on obtaining information about, was only just mentioned, its contents not described (I have later received another handbook, where it is described in more detail). Therefore, I started sending out inquiries to my supervisor in Glasgow as well as one of his colleagues. I didn’t want to start writing anything before I had some guidelines on it, and I could see that I was actually supposed to attend a course during my first year of study, where writing of literature reviews would be dealt with, but of course, since I have yet to come to Glasgow for several reasons, I haven’t attended said course :-/
Thursday last week and Monday this week, I finally received some information about what this review should contain, how long it should be, and when it should be handed in. I have 2-4 weeks to prepare an exposition about the literature available within the area of research in my PhD project, concluding with the aim and reasons for doing the actual project! It should, of course, be fully referenced. Now, if I didn’t have the data analysis of a post-doc coming up with all its issues, and the planning of my trip to Glasgow already at my plate, I probably wouldn’t fuss about this deadline, as I am not starting from scratch after all. I might even have enough energy to focus more on the basal testing I am supposed to do. But this isn’t the case, and even though I’m annoyed at low BG’s interfering with my ability to perform and concentrate, I find it very difficult to sit down and focus on analyzing the data that I have on my BG excursions in order to make reasonable changes. It is actually crazy, as taking the time to get an overview of it would probably safe me a lot more time and energy than it would cost me in the first place. Does that make any sense? As it is now, I just make minor changes from day to day, but this also means that it will take somewhat longer to get it all adjusted. I don’t know, I guess at the bottom-line I’m merely frustrated about the work load that have suddenly been placed upon my shoulders, and adding diabetes management to that doesn’t make it any easier. Anyway, it was nice to vent here :-)
Hypoglycemia and a busy schedule do not work well together. Today, once again my afternoon has been disturbed by a low BG, causing me to have to take a break from what I was doing. I couldn’t concentrate on what I was reading, and thought that I might as well take advantage of the time I needed to spend away from it, repairing the low BG, and write on my blog :-)
I am in the process of working this out, but it a process that is significantly slowed down by an immense amount of work-/study stress. Just after New Year I actually started the process of thoroughly testing my basal rates, as my numbers the last couple of months – and in general if you ask my loving pump- and D-nurse ;-) – clearly indicate that insulin levels need to be reduced. Even though I had a lot of plans to effectuate at work along with planning my trip to Glasgow at late January or beginning of February, I felt that I could work some basal test into the scheme. In the first week of 2008 I felt I was moving at a very decent pace, working out plans for experiments to carry out during week 2, researching the areas that I should check out when coming to Glasgow, as well as putting down the experiments and other practical issues that I should take care of over there. I knew that I was expected to stay in Odense until end of January to help an Italian post-doc with some data analysis, and I wanted to test the data and the software necessary for its analysis prior to her arrival mid month. This was a clever thought as I have, of course, run into trouble with this – bioinformatics is always a challenge :-)
My feeling of energy for the different tasks and assignments suffered an abrupt disappearance when I opened my University of Strathclyde mailbox in the beginning of week 2. I had received an e-mail telling me that my 3 month literature review was due now, and should be uploaded electronically as soon as possible. Reading the mail my jaw dropped down, and my mind started racing: What 3 month literature review? What should it contain? When is the exact deadline? Have I heard about this before?........ I search the university web-site to find information as I cursed the inability to obtain sufficient information about the obligations as a Scottish PhD-student. I couldn’t find the information I needed so I replied to the e-mail to inquire about it. That gave me an attachment of the institute’s post graduate study handbook with a note that I could find the information in that. Reading the 52-page Word-document sure provided me with some needed answers, both regarding assignments that should be handed in during the study (the intended contents of some of these reports were very well described) and the courses that I should attend. Unfortunately, the 3 month literature review that I was most keen on obtaining information about, was only just mentioned, its contents not described (I have later received another handbook, where it is described in more detail). Therefore, I started sending out inquiries to my supervisor in Glasgow as well as one of his colleagues. I didn’t want to start writing anything before I had some guidelines on it, and I could see that I was actually supposed to attend a course during my first year of study, where writing of literature reviews would be dealt with, but of course, since I have yet to come to Glasgow for several reasons, I haven’t attended said course :-/
Thursday last week and Monday this week, I finally received some information about what this review should contain, how long it should be, and when it should be handed in. I have 2-4 weeks to prepare an exposition about the literature available within the area of research in my PhD project, concluding with the aim and reasons for doing the actual project! It should, of course, be fully referenced. Now, if I didn’t have the data analysis of a post-doc coming up with all its issues, and the planning of my trip to Glasgow already at my plate, I probably wouldn’t fuss about this deadline, as I am not starting from scratch after all. I might even have enough energy to focus more on the basal testing I am supposed to do. But this isn’t the case, and even though I’m annoyed at low BG’s interfering with my ability to perform and concentrate, I find it very difficult to sit down and focus on analyzing the data that I have on my BG excursions in order to make reasonable changes. It is actually crazy, as taking the time to get an overview of it would probably safe me a lot more time and energy than it would cost me in the first place. Does that make any sense? As it is now, I just make minor changes from day to day, but this also means that it will take somewhat longer to get it all adjusted. I don’t know, I guess at the bottom-line I’m merely frustrated about the work load that have suddenly been placed upon my shoulders, and adding diabetes management to that doesn’t make it any easier. Anyway, it was nice to vent here :-)
Tuesday, November 20, 2007
Tagged for 7
Though I was thinking that I should take advantage of the fact that our little puppy is not at my lap while I'm typing, I wasn't really planning on posting a meme. However, Chrissie tagged me so here I go - I figure I better do it quick, or it will be even more difficult to find people to tag that haven't already been tagged by others :-)
Apparently this meme is about 7 random things about myself with 5 rules to follow doing this:
Apparently this meme is about 7 random things about myself with 5 rules to follow doing this:
- You've got to link to the blog of the person who tagged you
- You need to post these rules on your blog
- You have to list seven random and/or weird facts about yourself
- By the end of your post you have to tag 7 random people and include links to their posts (do I sense some sort of advertising purpose - i.e. spreading the word of the host of blogs available to dedicated readers and writers - of this meme? ;-))
- You have to let the people you tag know that they have been tagged by posting a comment on their blog
- I am not very good at prioritising my time for regular postings on my blog, hence my participation in NaBloPoMo is probably never going to happen :-)
- I am now officially a PhD-student at the University of Strathclyde, Glasgow, Scotland - or so it seems, yet I cannot help wondering when new administrative and/or bureaucratic issues concerning this will show up whether from Scotland or from Denmark ;-)
- Starting this Monday and 2 weeks ahead, Jimmi and I have no kitchen, which makes storing as well as cooking of decent food a challenge (did anyone say Nemo? :-))
- I have a thing with high blood sugars! I don't like seeing high numbers on my meter, which sometimes makes me take actions that will get me into trouble later. I am trying hard to limit myself in this context, but it is hard
- Yesterday I experienced my first bad site with a site change. I was a my parents because I had business to do in my hometown, and like I alway do I changed my infusion site in the morning. My fasting BG was 3.1 (56), and breakfast was a little lighter than usually, because I had plans to go visit my grandparents a couple of hours later, probably going to have a little something to eat there. When I got there I tested and found myself at 15.5 (279). I found that quite odd giving the low fasting value and light breakfast, so I did think about a possible bad site. However, I had just been to the dentist, and while I like my dentist very much (that is one of the reasons why I haven't found one here in Odense yet) and usually don't have any dental problems, I have a very hard time coping with the high-frequency spinning noice of her instruments used to remove the tartar. Therefore, I was also considering a possible stress-effect. I corrected the high, both with the pump and a small bolus by pen, just to be on the safe side, yet 90 min. later when I had just boarded the train back to Odense, I clocked in at 20.4 (367). I cannot remember the last time I saw a number like that, but it convinced me that something was not right with the new site. I don't usually remove my old site until I am sure that the new one is working, so I hooked back up to the old site and entered a bolus to "flush" it. I took a larger correction by pen, and by the time I reached Odense I could see that at least I wasn't rising anymore. I was 19.3 (347). After the bike ride home I felt quite exhaused and figured that it was probably the hours of ridiculously high sugars now taking effect, but it turned out that the corrections were now finally working and I was actually going low. Just an hour after being 19.3 I was 68! When I removed the bad infusion set I could see that the catheter was bend at a 90 degrees angel, so no wonder the insulin didn't seem to work!
- I tend to have a rather messy workplace, both at home and in the lab. However, I usually know where to find the things I need, and so even if it might seem chaotic to other people, I am on top of it :-)
- I need to take Nemo for her late night walk now, so I gotta stop now :-)
Monday, November 12, 2007
The adventures of Nemo
This is just a short up-date to keep you posted on our adventures with Nemo (I still haven't found a way to transfer the pictures from my phone to the computer, and one of our friends has borrowed our digital camera for his awesome trip to some exotic island. Sorry!). Right now Nemo is pushing around behind me in the couch, battling one of Jimmi's socks, and I think that it is about time that I take her out for a walk :-)
Nemo is adjusting well to us and our home, and Jimmi and I are adjusting to her as well. She is very playful, but also very good at obeying our calls, so we have had her leash-free several times already without any problems. She has started to sleep in her basket after being very sad the first couple of nights, forcing Jimmi to get up and tuck her in on the couch (we don't want her in our bed). Now she will usually run around just as we are getting ready for bed, but then, once the ligths are off, she will settle down and go to sleep.
Jimmi is home with her most of the daytime and has taught her to sit on command today - whether it is still coincidental or not, I am not quite sure, but at least it worked when he wanted to show me :-)
We haven't started any specific training with her yet, but are planning on taking her to some puppy courses in the near future. Jimmi was very positive one morning, when I was low - when I'm low while sleeping I tend not to hear the alarm clock - because he was sure that Nemo could feel that something was not quite right. I bet she could, but I think it might just be due to Jimmi's reaction - at least I haven't noticed any change in her behaviour what so ever on times during the day, where I have treated lows myself :-)
On the Scotland front not much have happened since last week. I still haven't seen any money, so I think that if there is still no sign on them in my account tomorrow morning, I will write the lady, who said that the money transferred would be arranged Wednesday last week to hear if "arrange" was just another word for deferring thing further ;-) I think that I have been very patient so far, actually more than should be expected, so I think I am more than entitled to push for answers and not least my salary!
Now Nemo has fallen asleep on my lap, paws resting just besides the computer and her head between my arm and the table - puppies are so damn cute, and like Chrissie said in a comment this is probably the reason we put up with them despite their misbehaviour :-)
Wednesday, November 07, 2007
Found: Nemo
The title of this post is double-sided in references. I finally - or so I thought (see the next paragraph) - was registered at the Scottish university last week as I received the registration to sign as well as information about my e-mail account, user name and password for the different IT services. Nemo is the name of the exchange mail service at the university (the ability to check your university e-mails outside the university network).
Today, another chapter in the seemingly never-ending story of the registration hassle was written - in e-mails I received from my supervisor over there. I'm actually glad that at the time his first mail - a long correspondence between several department and registration employees - I was attending the biweekly group-meeting in our research group here in Odense, otherwise I think that I might have send a couple of upset mails to several of the people involved ;-) Here is what it was all about: We have applied for a fee waiver, which was approved with starting date August 1st this year and ending date July 31st 2010. However, in terms of the finance office at the university, the fee waiver is only valid for the study year 2007-08, i.e. from October 1st this year until June 2008, and so the waiver didn't cover August and September because I have only been registered as a student from October 1st. Sigh!! However, apparently things have now been worked out by them registering me for the 2006/07-session, applying only August and September of the current year. Bureaucracy!! From the last messages that I got today, it seems like they are now finally starting to arrange the transfer of my salary for August and September - October wasn't mentioned, I don't know what to think of that :-/
Back to Nemo. Nemo is the name of our new puppy that we got this weekend :-) On Saturday Jimmi received a call from a guy who had seen his announcement of our search for a puppy on the Internet. The guy had a dog with a litter of 4 puppies that they were looking to sell off. We went out to see them, and of course fell in love with one in particular. When we got home we discussed it a bit, but decided that to be totally sure, we would sleep on it. We decided to get the pup, and Jimmi got his father to take him to the little farm where the dogs lived. I thought it was a bit hasty to go get it on Sunday night, but Jimmi would rather do that than waiting to one of the weekdays where I probably wouldn't be home at the time he would get there with the puppy, and he didn't want to wait a whole week. The poor little puppy was a bit frightened by the car ride in the dark, though; it threw up all over Jimmi :-(
Now it has been a few days with the puppy in the house, and it seems like it is settling down nicely. The first couple of nights Jimmi had to get up to go the couch to sleep with it in his arms because it was crying for company, but last night we could both stay in bed. We don't want the dog to get use to our bed, which is why Jimmi got up to sleep with it on the couch instead. It is allowed to lye on the couch, although it is still not big enough to get up there by itself, even though it tries hard :-) The picture below is our pup, when we went to see it on Saturday. I have some pictures of it in our home, but they are on my mobile phone, and I haven't taken the time to transfer them to the computer yet.
Sunday, October 28, 2007
A perfect day
Is there such a thing in D-life? I don’t know, but looking at the readings at least it sometimes seems so :-) I had such a day Thursday this week. All of my reading were in target, from 4.2 (76) to 6.7 (121). Go me!
On the Scotland front I just heard from my supervisor over there that the German research fund’s money have finally arrived on the right account at the Scottish university, and that the registry office are pushing hard to get the registration through as soon as possible. I am looking forward to see if this will then cause the missing salary from the past three months to enter my account!
Actually this week has been rather good BG-wise. When I look at the pie charts in Kevin’s logsheet that I use for logging, I can see that so far 72% of my readings have been in range and only 5% above. The part of readings below target could be smaller, but at least when looking at those values, only a minor part of them are really low (I must admit, I don’t really regard readings of 3.5-3.9 (63-70) fasting or just before a meal as low, or at least I don’t treat them with anything but the meal that I’m about to have). When I left work Friday afternoon the statistics were even better with 81% of the readings in range and only 3% above, but weekends generally have a tendency to mess things up a bit.
Today I went for one of my “marathon” bike rides (little more than
This week Jimmi and I went for another visit with the dog that we were going to have. I say “were” because yesterday Jimmi got a txt-message from the owner, who apparently had gotten surprising news about the father of the pups. It seems that the father is actually a Smaller Münsterländer, and as these dogs grows to about 50-
Jimmi with a sleeping Trille in his arms
Trille awake on my lap
Mayby she already knew that she wouldn't come home with us? She does look sad here. Bye Trille, we hope that you find another good home!
On the Scotland front I just heard from my supervisor over there that the German research fund’s money have finally arrived on the right account at the Scottish university, and that the registry office are pushing hard to get the registration through as soon as possible. I am looking forward to see if this will then cause the missing salary from the past three months to enter my account!
Subscribe to:
Posts (Atom)